Author:Charlotte Raven,Edward Wild
'Searingly honest and important' RACHEL CLARKE
Honest, intelligent and unsentimental, Patient 1 is a startling self-portrait written with wit and vulnerability, and a unique testament to the power of hope in the face of illness.
Charlotte Raven had never heard of Huntington's Disease when, in her mid-thirties, she discovered that her father was suffering from the illness. Life for her and her young family would never be the same again.
Frank and fearless, this is her memoir of coming to terms with this inherited neurodegenerative disease and its impact on her body, mind and memory. It is at once an act of self-preservation and a kind of reckoning: with the illness, with the person she once was and with the person she is now.
In an afterword, Raven's doctor Ed Wild - one of the country's leading experts in Huntington's - explains how doctors and patients like Charlotte are working together in the hope of one day eliminating this disease altogether.
'Insightful, frank and often moving...Raven writes with humour...and no small amount of courage' Guardian
Shortlisted for the RSL Christopher Bland Prize 2022
Insightful, frank and often moving... Though there is an underlying note of deep sadness, more often she writes with humour, a dose of self mockery and no small amount of courage.
—— Stephanie Merritt , Observer[An] unsparing memoir... but Raven does much more than write an illness memoir... Raven explains in her introduction that Huntington's is not a linear disease but is experienced rather as a series of traumatic random-seeming assaults... it is that formless inevitability...that Raven enacts so powerfully here.
—— Kathryn Hughes , GuardianA phenomenal achievement... [it] chronicles her journey into her illness in a way that is truthful, traumatic and brave.
—— The TimesBrutally candid... [a] devastating but remarkable testament of self-preservation.
—— Caroline Sanderson , The Bookseller, Editor's ChoiceCharlotte Raven's Patient 1 is brilliant, terrifying, heart-breaking and laceratingly honest. She has the unflinching, unsentimental clarity of Rachel Cusk and the tender humour of John Bayley - but her style is utterly unique.
—— Peter BradshawA searingly honest and important read. With neither pity nor sentimentality, Charlotte Raven captures the experience of living while losing one's mind. I cannot forget her words.
This is a deeply moving and profound memoir about facing the worst in life - and continuing. Everyone should read it.
Patient 1 charts Charlotte Raven's bittersweet journey from her charmed, hedonist youth to an embattled future. Her charismatic character and scandalous humour is there on the page despite the creeping privations of Huntington's. With the kind of self-knowledge only accessible through suffering, she still manages to write powerfully and with beauty.
A powerful account of living with Huntington's disease.
—— Katy Guest , Guardian[A] chatty, irreverent memoir... a surprisingly pithy and entertaining read. The author's candour and self-depreciation make her all the more likeable.
—— UK Press SyndicationConsidering this is essentially a book about a terminal illness, it's surprisingly entertaining.
—— Katie Wright , iRaven is unsparing about her life now... she hasn't lost...her biting wit and mordant sense of humour.
—— TabletWill actually help you decide what to add to your next grocery shop... This is one of the clearest and most accessible short nutrition books I have read: refreshingly open-minded, deeply informative and free of faddish diet rules.
—— Bee Wilson , The Guardian - praise for SPOON-FEDA well-researched and informative book ... Great to see academia catching up with the real world.
—— Natural ProductsThe book that needed to be written about the Lake District.
—— Caught by the RiverA poetic journey of restoring nature in an iconic landscape. Wild Fell informs and inspires.
—— Jake FiennesA visionary, practical and lyrical book on restoring land, from one of the best in the game, on the front line of nature restoration.
—— Benedict MacdonaldLee Schofield's Wild Fell is a soaring elegy to nature, a book infused with a deep love of place, and a stirring call to restore wildlife to our landscapes. Written with wit, verve and humility, Wild Fell is above all a story of hope, weaving together deep insights about botany and the history of the land with a wisdom won through years of practical experience.
—— Guy ShrubsoleWild Fell is a beautiful, powerful book that subtly navigates great and complex challenges.
—— George Monbiot